Patient characteristics
| Mean±SD (max-min, median) | n | |
| Age (years) | 43.2±13.4 (23–68, 43) | 33 |
| Sex | M:F=11:22 | |
| Age at onset (years) | 26.6±11.5 (10–56, 23) | 33 |
| Duration from onset of disease to present (years) | 17.1±10.0 (3–40, 13) | 33 |
| Age at starting use of a cane/brace (years) | 29.2±13.7 (18–65, 29) | 17 |
| Age at starting use of a wheelchair (years) | 33.4±13.3 (17–64, 29) | 23 |
| Age at loss of ambulation (years) | 35.8±12.4 (23–64, 33) | 21 |